People with Invisible Ilnesses can Speak Out

Tired of feeling ignored, as if no one understands or cares about how you are feeling, including your doctor(s)? If so, you are definitely in good company. Many people who suffer with invisible illnesses (conditions that don’t cause visible signs) are often treated as though they are the problem, rather than what is ailing them. There are many invisible illnesses, such as irritable bowel syndrome, chronic pelvic pain, CFS and, of course, fibromyalgia.

As part of the necessary research for a new book on how doctors and other members of the medical community view patients with these conditions, Susan Bilheimer has created a survey and wishes to hear from patients suffering from invisible illnesses. Bilheimer feels that the medical community needs this book and hopes that it will instill some understanding into how patients with invisible illnesses are treated. The survey can be found at http://www.surveymonkey.com/s/TDWVHDW.

I encourage all of you, whether you are regular readers or are just passing through, to take a few minutes to fill out the survey. Many of you have told stories of how symptoms were ignored or downplayed. For some of you, obtaining a diagnosis took years of bouncing from doctor to doctor until someone finally realized you were truly suffering and weren’t just drug seeking.

Suffering from an invisible illness means that health care professionals, family members friends and acquaintances don’t understand how hard some days can be. Here is your opportunity to be heard and believed.


disclaimer

The information provided on MyFibro.com is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her health professional. This information is solely for informational and educational purposes. The publication of this information does not constitute the practice of medicine, and this information does not replace the advice of your physician or other health care provider. Neither the owners or employees of MyFibro.com nor the author(s) of site content take responsibility for any possible consequences from any treatment, procedure, exercise, dietary modification, action or application of medication which results from reading this site. Always speak with your primary health care provider before engaging in any form of self treatment. Please see our Legal Statement for further information.

 

Fibromyalgia is a prevalent condition that affects many people in the United States. Approximately 3.7 million Americans have Fibromyalgia. That is 1 in every 73 people.

More Quick Facts...

Fibromyalgia Videos

fibromyo